Children with rare diseases will be supplied with medicines at state expense.

The third, final reading of the draft law passed in the State Duma on expanding the list of rare diseases, according to which funds for medicines should be allocated from the federal budget

Five more diagnoses were added to the list. For babies with such diseases, medicines (very expensive and rare) will be purchased centrally.

The deputies personally promised to control the execution of the law, since the situation with the drug provision for seriously ill children in the country is still very disappointing.

Now, with the amendments, the list of diseases includes the five most expensive ailments - hemolytic-uremic syndrome, juvenile systemic arthritis, three types of mucopolysaccharidosis and another 24 diagnoses.

In the coming days, the list should be signed by Russian President Vladimir Putin. From this point on, the regions will no longer take part in the purchase of medicines; this will become a federal matter.

Previously, parents of seriously ill children often complained about the lack of expensive drugs.

Local officials were justified by the lack of funds in the budget and the exaggerated demands of medical suppliers.

Today, there are 1,556 children living in Russia with pathologies that are rare.

Treatment of some patients with the most "costly" ailments costs the regional budget 100 million rubles a year.

The authors of the law have calculated that in order to treat everyone who is currently on the list, the federal treasury will need to allocate 10 billion a year. But since the purchase will be centralized, suppliers can provide a discount of 10-20% of the total amount.

The Ministry of Health of Russia will be responsible for the execution of the law. The document comes into force from 2019.

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